My Brain Box and brainstrust
About brainstrust brainstrust supports people living with a brain tumour and their loved ones. Their mission is to ensure everyone with a brain tumour is supported and resourced to live the life
I considered myself to be a relatively fit & healthy lady with quite a strong character the 31st of January 2011 changed all that.
I cycled into work sat at my desk & then woke up in A & E. I had suffered a seizure which had left me with a badly bitten tongue a gash to my head & a black eye – I remembered nothing.
I was informed by the medical team that a seizure was quite common & I was discharged.
I went home and cried I was in deep shock & when my children came home from school & saw me they were visibly upset. Two days later an appointment came through for a cat scan in two weeks & an appointment with the neurologist inthree months time. I had now had time to think & come to terms with what had happened to me & I knew something was seriously wrong.
I went to see the neurologist privately & the following day underwent a brain scan & although the radiologist could not give me the results there & then I knew he had seen something. My phone rang at 9am the following day requesting me to pop into the neurologist’s clinic at 2pm that day where he informed me that I had a very large meningioma tumour on my brain which needed to be removed as quickly as possible. I felt numb & sick my husband & I held each other & vowed to be strong.
Telling the family & friends & also work colleagues who had witnessed the seizure proved very tough indeed. Within days we were in London the surgeon explained the procedure pointing out the risks & driving home the fact that this was a matter of urgency with the operation taking place the following day. Unfortunately I suffered another seizure & although I am not a particularly religious person I thanked God that I was in the best place & the op was postponed it was only months later that my husband told me that the doctors had warned him that if I suffered a seizure during surgery he would be travelling back to Jersey alone.
I am delighted to say that the operation was a complete success & after only just over a week I was desperate to return home to my children & family. The day we walked into the arrivals lounge still brings a tear all my family were there waiting crying with relief & anticipation. The next few months proved tough the medication was very powerful I looked dreadful & I lost a great deal of weight. I had good & bad days I had hundreds of cards & phone calls wishing me well I realised how many people cared & how much I loved my husband & family.
I was unable to drive for a year neighbours family & friends were exceptional offering lifts & helping out with the children. Six months later I was back on my beloved bike a little nervous but determined. I have now made a full recovery receiving regular MRI scans & check up’s.
Although you may sometimes feel it you are never alone.
About brainstrust brainstrust supports people living with a brain tumour and their loved ones. Their mission is to ensure everyone with a brain tumour is supported and resourced to live the life
Due to popular demand, we are delighted to let you know the Quiz is back! Save the date – Wednesday 29th March 2023 in The Boundary, Grainville Playing Fields from
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