URGENT PRESS RELEASE - Brain Tumour debate in the House of Commons.

Tue 19 April 2016

19th April 2016

Local Charity urges States of Jersey & Islands Health Officials to review and support the improvements announced by the UK Government.

Following the House of Commons debate at Westminster Hall into funding for research into brain tumours & the overall improvement needed in care to patients, the Jersey Brain Tumour Charity is urging the States of Jersey and local health officials to show their commitment and support matching the UK government’s response yesterday. This builds on the support already shown by Andrew Green & the Health sector officials that we have met and are excited by what we can achieve together.

George Foreman MP the Government Minister for Life Sciences at the Dept of Health announced at the conclusion of the debate “The (UK) government can do more and I’m proud to announce this afternoon, that Government will act.” He went on to also say that he is putting forward a range of recommendations including setting up a brain tumour task force at Department of Health.

Kevin Pamplin, Business Manager for the Jersey Brain Tumour Charity, said:

“Yesterdays debate in the House of Commons was a real landmark and a highly emotional moment for anyone affected by a devastating brain tumour diagnosis. It is a simple fact that brain tumours are the biggest killers of children and adults under the age of 40 & benign brain tumours have life changing effects. 1.5% of the overall spend on cancer research is not enough and frankly insulting.

“Through our experience supporting Islanders, with both malignant and benign brain tumours, we are aware of gaps in knowledge and support in Jersey. While we wait for the research funding to improve we would like to see more support in raising awareness of brain tumours amongst GPs and other healthcare professionals here in Jersey, and a review into the current processes for supporting brain tumour patients.
It is now, as agreed in the House of Commons yesterday, frankly shocking that anyone should not be supported when there are organisations like us ready to support islanders from the moment they are diagnosed via the Hospital or GP’s. We call for the states alongside the islands Health Officials to support this improvement & the UK Governments call to action.”

In matching this level of awareness and commitment to support the suggestions by the UK government we are doing our part here in Jersey. As we will be hosting the islands first brain tumour conference on Friday 30 September 2016. At this stage we can confirm that one of the key speakers will be top London based neurosurgeon Dr Neil Kitchen, who is keen to see the changes we are calling for and help us support more Islanders so they don’t have to face this life challenging experience alone.

The Jersey Brain Tumour Charity continues to do its part in raising awareness and supporting Islanders as much as we can, we are proud of the support we have already received from the general public and the support shown by the Health Minister and others but we wish to work together with everyone to make sure the best possible care and service is provided for those affected by a brain tumour diagnosis, we must fix these issues and that time has come.

END

Kevin Pamplin, Jersey Brain Tumour Charity. For Interviews please telephone 510867

Notes to editors

Jersey Brain Tumour Charity services are highly tailored to the needs of our patients to ensure we provide high quality and consistent support during times of uncertainty. Here are our key “projects” that are vital to those we support all year round:

• Our monthly ‘brainy buddies’ support group is advertised regularly through the local media. It’s designed to extend the reach of the current support offered and promotes empowerment and independence through facilitating shared experiences and peer support for patients, families and friends. It’s friendly, informal and inclusive with a key speaker provided from other agencies or areas of interest.

• Our 24/7 free phone line offers round the clock support to patients, carers, families and the wider community.

• Specialist face-to-face emotional and practical support ensures our patients’ needs are met and enables us to sign-post to other agencies if necessary.

• Providing critical financial support to meet the diverse needs of our patients. This varies from low level financial assistance through to funding specialist nursing care for a 15 year old patient requiring lifelong care.

The impact of what we do

Depending on the type of tumour, patient survival rate is high. We understand the impact of a brain tumour is far reaching and can leave patients with long term disabilities such as memory loss, visual and hearing impairment, balance, emotional highs and lows, reduced resilience and tolerance, depression and physical disabilities in both the short and long term.


JBTC