Origins of our charity

The Origins of the Charity


On August 9th 2010 Sue May suddenly had a brain seizure while driving to work and was diagnosed with a meningioma which fortunately turned out to be benign.

2 weeks later and she had a further shock when she was told that she had been born with the tumour and over the years it had attached itself to her skull and she would need to have a titanium metal plate fitted in her head (a craniotomy).

The operation performed on 15th September 2010 was a success and Sue was fortunate to suffer no long term after effects.

Despite being fiercely independent her recovery was long, frustrating and challenging with initially severe headaches 24 hours a day and where sleep became her only escape from pain.

Sue felt driven to use her experience to help others by raising awareness, providing practical and emotional support and financial assistance when needed. 

For her she says “it was the little things” that helped her the most and the massive support she received from family and friends.

Today she considers herself to be so lucky to just “be here! ”

It is important to her that she uses her experience to help others and their families hence the formation of the Jersey Brain Tumour Charity.

As she now says:

“Every day is a gift.”